Breath from Salt: A Deadly Genetic Disease, a New Era in Science, and the Patients and Families Who Changed Medicine Forever by Bijal P. Trivedi.
I'm not going to do much of a review on this book, but I want to say this: READ THIS BOOK.
I'm betting it will end up in my top three books of 2021. Trivedi weaves the "politics", the patients, and the science into a story that details the administrivia, the human side, and the scientific side of the story of a 100%-fatal-at-a-young-age to 95%-treatable disease, and showing, too, how many of these people are fall into more than one of these categories, the scientist who is sick, the fundraiser who lost a child, the patient whose advocacy pushed policy. In many ways it reminds me of _The Emperor of All Maladies_ by Siddhartha Mukherjee, and that's a very good thing.
Seriously. Worth a read.
I was reading an excellent fantasy book when I decided to start this one just to see if it was going to be any good. I'll now pick up the fantasy. I didn't look at it while I was reading this one.
I'm not going to do much of a review on this book, but I want to say this: READ THIS BOOK.
I'm betting it will end up in my top three books of 2021. Trivedi weaves the "politics", the patients, and the science into a story that details the administrivia, the human side, and the scientific side of the story of a 100%-fatal-at-a-young-age to 95%-treatable disease, and showing, too, how many of these people are fall into more than one of these categories, the scientist who is sick, the fundraiser who lost a child, the patient whose advocacy pushed policy. In many ways it reminds me of _The Emperor of All Maladies_ by Siddhartha Mukherjee, and that's a very good thing.
Seriously. Worth a read.
I was reading an excellent fantasy book when I decided to start this one just to see if it was going to be any good. I'll now pick up the fantasy. I didn't look at it while I was reading this one.