More medication woes

OMG, this medication is truly a fucking nightmare. Not the meds themselves, of course. They work, at this point, beautifully for me.

Procuring them, otoh, is awful. I just feel, completely stupid stressed about this, how as soon as you get one box, you have to worry about the next

I run out this Thursday, 23 May, which means ideally I have a refill by 30 May but since I'm on the starter dose again, if I go past 6 June, I need another round of the stater dose, rather than a titrate up. I'm fine with either, but I want one or the other.

After a few weeks of decent supply, we're back in unobtainium land for the initial dose, though Costco contacted me yesterday to let me know that my 7.5 Rx had come in. That's was for early April, and no, I am not going up to that dose, I'd be sicker than a dog, I expect.

The lowest dose is working for me so I'm fine staying on it, or going one up. But I have to decide which I ask my provider for and deciding for one when the supply is only for the other would be a bad move.

Basically, it's a black box, complicated by the fact that you need a prescription for everything, which means nimbleness and retooling on the fly aren't possible.

Ugh.

My provider is on vacay until next week. I'd contacted her late last week but she was probably already gone, so yesterday I let an email for the general message line at the place. Fingers crossed someone contacts me and offers me a Rx.

I wish the providers would give me a prescription for both doses and I could fill whichever comes in first.

The FDA has approved selling Zeppy in vials but Lilly won't go for it. I honestly think FDA needs to step in to tell them to stop starting people on a drug they can't rely on being there and while they can't meet current demand. They keep on marketing and starting people and they're completely undersupplied and won't do what it takes to increase supply a bit.

Ah well. I'm grateful the drug exists. A lot less grateful about how it's being distributed.